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MY STORY Viktor Jozić, president of the Association of persons with disabilities Sinergija Samobor

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I can say without a doubt that in the life of a disabled person there is a lot of pain, tears, sleepless nights, problems with bureaucracy, problems with stigmas, personal inner turmoil and despair, but there is no use in self-pity, turn to life with a purpose, says Jozić

Viktor Jozić has been the president of the Association of Persons with Disabilities Sinergija Samobor since 2018. His candidacy was prompted by the social responsibility he feels as an individual towards the marginalized and most vulnerable groups of society, which are children with developmental disabilities and people with all degrees and types of disabilities. As he himself is a disabled person, as well as his son and his brother, he is familiar with all the obstacles and struggles that disabled people have to overcome during their lives.

– I am of the opinion that it is the individual’s social responsibility that is an important factor in the development and progress to which every individual has the right, and I would say a human task and a kind of obligation, to weave personal values, experiences and examples of good practice into the local community, and thus guide the solution of society’s problems in as a whole, initially locally, then regionally and nationally.

In modern society, which is characterized by technological changes and where political and economic influence is great, great demands are placed on the social community, as well as on the subjects in which they operate. Marginalized groups in the territory of the Republic of Croatia can hardly get out of the trap of social exclusion and marginalization without knowledge and additional help. My guiding thought as president of the association is primarily based on the aspiration to make the local community aware of the problems of people with disabilities, the difficulties they face every day, to sensitize the environment and achieve integration and inclusive growth and development of children with disabilities and adults with disabilities – Viktor told us.

This association has about 1400 members, of which about 250 are active. The association of persons with disabilities Sinergija Samobor implements numerous projects and programs, of which the president highlighted the basic projects financed by the local community, specifically the Institutional Support of the City of Samobor as well as the Institutional Support of the City Sveta Nedelja that ensure financial stability – the functioning of the Professional Service of the association.

– I would like to point out the ‘Van for all’ program financed by the City of Samobor, this program in accordance with the UN Convention on the Rights of Persons with Disabilities, associations with the support of the City of Samobor and competent institutions, enables adapted van transport to hospitals for disabled and immobile people with disabilities. rehabilitation institutions, to sports and cultural events and to other necessary institutions.

Two projects financed by the European Social Fund are implemented in the association. The project ‘Development of personal assistance services for people with disabilities’ has been implemented in the association since 2015, and includes six users of the personal assistance service and employs six personal assistants.

The general goal of the project is to strengthen the social inclusion of people with disabilities through the further development and improvement of the quality of personal assistance services, while the specific goal is to increase social inclusion and improve the quality of life of people with the most severe type and degree of disability, people with intellectual disabilities and mental impairments through the provision of personal assistance services assistance.

By implementing the personal assistance service, we try to prevent the institutionalization and social exclusion of people with disabilities and people with intellectual disabilities and mental impairments, and we try to reconcile the business and family life of the aforementioned groups for a more independent life and greater involvement in the community. By spending quality time, the users of the personal assistance service feel more satisfied, happier and feel they belong to the community on an equal basis.

The second project, financed by the European Social Fund, is called ‘Equality in the community with a sighted companion’, and will be implemented from 2021. Namely, the independent movement of blind and partially sighted people in unknown and inaccessible spaces requires the help of a sighted companion. The goal of the project is to strengthen social inclusion and meet the needs of blind people. The target groups included in the project activities are adult blind and highly visually impaired people from the area of ​​Zagreb County.

Through a three-year program of associations that provide personal assistance services for people with disabilities in the Republic of Croatia for the period 2019-2021 financed by the Ministry of Labour, Pension System, Family and Social Policy, the user of personal assistance improves the quality of his life with the help of a personal assistant. Through the program, users are provided with the basic conditions for an independent life for four or eight hours a day, five days a week. 11 personal assistants are employed who, through the program, help users of personal assistance to become more and more active in their community, some are more active in sports, go out to social events, have the ability to organize their own time and the obligations they want to fulfill, without the help of their loved ones, and with the help of a personal assistant.

Zagreb County provides funds for two programs. The program ‘Creativity to prevent the alienation of persons with disabilities’ contributes to the social inclusion and integration of children with developmental disabilities and persons with disabilities through creative workshops led by a member of the association, Vesna Lisec, who is also a person with disability. The program represents an educational process of acquiring new skills that help the integration and mutual social interaction of people with disabilities.

The program ‘Creativity to prevent the alienation of persons with disabilities’ improves interpersonal relations within the members of the association and reduces the risks of their alienation. In a casual atmosphere together with the participants, respecting their opinion and freedom of choice, motifs and topics of work are chosen that encourage visual curiosity. Through the implementation of the work program, various artistic and creative techniques are gradually applied.

The main goal of the program is to strengthen self-confidence, awaken and develop the ability to create and be creative through direct experience and the world around you. Developing a positive attitude about oneself and forming personal beliefs in the field of artistic reality.

Awareness of art elements and construction and creation of art works in all elements in a manner acceptable to children with developmental disabilities and people with different types and degrees of disabilities. The second program is called ‘Sustainability as a social challenge for people with disabilities’ under the leadership of association member Danko Klasan, it is intended for people with disabilities and children with developmental disabilities with the areas of the cities of Samobor, Sveta Nedelja, Stupnik and Žumberak municipalities. The project is based on the restoration of old furniture for the purpose of sustainability and transformation from old to new.

By recycling old furniture, the members of the Association of Persons with Disabilities Sinergija Samobor directly address citizens and the public, raising awareness of the need to recycle and reuse waste. The goal of the project is to empower the aforementioned groups and their integration into society and coexistence in the local community and beyond, as well as psychological support for parents and guardians – explained Jozić.

For Jozić, the challenges in his work represent motivation and encourage a fighting spirit for progress, both for him as president and for the professional services of the association. As the biggest challenges, he certainly points out the fact that the association is often the ‘first line of the front’.

– Users often express their dissatisfaction with the problems of a health, administrative and financial nature that they encounter in everyday life, precisely in the premises of the association, but this certainly also shows how here our members feel like a family in front of which you can ‘shake it off’ when you are having a hard time.

I believe that the biggest problem and challenges faced by people with disabilities in Zagreb County are certainly in the field of infrastructure and transport (not) adapted to people with disabilities. The association has been struggling with this issue for a long time, so meetings were held on several occasions and appeals were made to solve this problem both at the local and regional level.

In July 2021, together with the representatives of the City of Samobor and the director of the company Integrirani promet zagrebačkog područja d.o.o., a meeting was held related to the establishment of an integrated transport model in the wider Zagreb area with the aim of gathering experiences and the best solutions in the application of integrated passenger transport with special reference to people with disabled and infrastructure adapted to them.

Furthermore, I believe that in the city area there is not a sufficient number of infrastructural facilities adapted to the care of adults with disabilities, and there is a deficit of specialized personnel who would provide psychosocial support to children with developmental difficulties and persons with disabilities, as well as persons who experience a crisis when the disability occurs. Unfortunately, the problem that cannot be ignored is the passivity of the members – said the president of Sinergija.

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Disability digest

ENERGY POVERTY Supporting People With Disabilities

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People with disabilities often have significantly greater electricity needs than other citizens across the European Union

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Energy poverty is affecting a growing number of households across the European Union, and recent research shows that it has a disproportionate impact on people with disabilities. The reasons for this disparity are numerous and extend well beyond financial hardship alone.

People with disabilities generally have higher electricity needs because many rely on medical equipment and assistive devices. They also tend to consume more energy for heating and cooling their homes, particularly people with physical disabilities whose health and well-being often depend on maintaining stable indoor temperatures.

To help address the growing problem of energy poverty, the European Network on Independent Living (ENIL), together with partners in the ASSERT project, has launched an online learning platform for professionals working with households affected by energy poverty.

The ASSERT platform has been developed primarily for organisations representing people with disabilities, social workers, energy advisers, healthcare professionals and other specialists who need additional knowledge and practical skills to tackle energy poverty more effectively.

In addition to professional training, the platform provides people with disabilities with practical advice and guidance on avoiding energy poverty, managing household energy costs and making more efficient use of energy systems.

More information is available on the ASSERT website at assert.aisforacademy.eu. Registration is free and open to organisations and professionals interested in strengthening the capacity of people with disabilities to respond more effectively to energy poverty.

ASSERT is a relatively new European project funded through the LIFE Programme. Over the past year and a half, it has been working to ensure that people with disabilities are not left behind in Europe’s transition to clean energy. The project currently operates in five European Union member states—Cyprus, France, Greece, Italy and Spain—and brings together experts from a wide range of fields, including disability rights and energy efficiency.

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Disability digest

Sephora ‘Quiet Hours’ Make Shopping More Accessible

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Global beauty retailer Sephora has introduced a ‘Quiet Hours’ programme across its stores worldwide, aiming to create a more comfortable and accessible shopping experience for neurodivergent people and anyone who prefers a calmer retail environment

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The initiative is the first global programme of its kind in the beauty retail sector. During designated Quiet Hours, stores will lower the volume of in-store music, adjust digital displays to reduce visual stimulation and, where possible, minimise the presence of strong fragrances. At selected locations, customers will also have access to additional options, such as mobile checkout, making the shopping experience simpler and less stressful.

The programme was developed in partnership with Open Inclusion and Purposeful Futures, with direct input from neurodivergent customers and employees whose experiences helped shape the initiative.

Before its global rollout, Sephora tested the programme in 32 stores across eight markets. The pilot project found that the majority of neurodivergent customers believed Quiet Hours significantly improved their shopping experience. In addition, 90% of all surveyed customers said the initiative made stores more inclusive and welcoming for everyone.

Experts involved in developing the programme note that people with autism, ADHD and other sensory issues often find shopping centres highly challenging environments because of loud music, bright lighting, strong fragrances and large crowds. Even relatively small adjustments, they say, can substantially reduce sensory overload and make shopping a more comfortable and independent experience.

The initiative has also received positive feedback from employees, who report that the calmer environment enables better communication with customers and reduces stress throughout the working day.

By introducing Quiet Hours, Sephora joins a growing number of major retailers offering sensory-friendly shopping periods. Similar initiatives have been adopted in recent years by supermarkets, department stores and cinemas, reflecting a broader understanding that accessibility is not only about removing physical barriers but also about creating environments where people with sensory sensitivities can feel safe, comfortable and included.

Sephora says Quiet Hours represent just one step towards creating a more inclusive shopping experience and has pledged to continue working with the neurodivergent community to develop solutions that meet the needs of an even wider range of customers.

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Disability digest

Manifesto on the Rights of Young People With Disabilities

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Without young people with disabilities in newsrooms, government ministries and national parliaments, the slogan “Nothing About Us Without Us” remains just that—a slogan, a decorative phrase displayed on banners at disability rights marches.

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Consider for yourself to what extent young people with disabilities in the European Union truly enjoy their rights, and whether those rights are fully realised or remain largely declarative—a polished façade of the welfare state with deep cracks beneath the surface.

One answer to these questions can be found in a survey conducted last year by the Youth Committee of the European Disability Forum (EDF). The survey gathered responses from 183 young people with disabilities across all EU member states. Its findings were published in the EDF manifesto on the everyday lives of young people with disabilities, entitled The Right to Shape Our Future.

The survey results should serve as a wake-up call for decision-makers across the European Union. Respondents expressed dissatisfaction with every major aspect of social life. Overall, young people with disabilities said they do not enjoy the right to live in a fair and accessible society. They also reported that their opportunities to shape their own futures and participate in decisions affecting their lives are significantly restricted.

When it comes to influencing society, respondents said that the media either ignore their lives and rights altogether or portray them through stereotypes. Even when useful information is available, it is often presented in formats that remain inaccessible to people with disabilities.

Without young people with disabilities working in media organisations, government ministries and national parliaments, the slogan “Nothing About Us Without Us” risks remaining exactly that—a slogan, a symbolic message carried on banners rather than reflected in public policy and everyday decision-making.

Young respondents were equally critical when asked about accessibility, which the manifesto describes as little more than “a decent proposal” rather than a lived reality.

“People with disabilities face a ‘disability tax’—they pay more for housing, transport and healthcare while navigating a world that was not designed with them in mind. From inaccessible bus stops to cafés that cannot be entered, the built environment continues to undermine independence. True equality requires infrastructure that anticipates diversity rather than treating it as an afterthought,” the manifesto states.

For many young people with disabilities, the right to shape their own future is further limited by segregated education systems that prevent them from reaching their full potential. This, the manifesto argues, contributes to a “poverty trap.”

By the time they complete their education, many are not adequately prepared to compete in the labour market, while the jobs they do obtain often provide only enough income to meet their basic needs.

At the same time, earning an income can result in the loss of essential social support, effectively penalising ambition and trapping many young people with disabilities in poverty, the EDF manifesto concludes.

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