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MY STORY Mario Bebek

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The key components for a successful life are will, effort, desire, faith in oneself and in God. It’s your turn to determine the direction of movement. Don’t worry if you’re fooling around. Don’t worry if you don’t realize you’re a fool, says Mario, a famous motivational speaker with disabilities

Mario Bebek was born on October 28, 1991 in Zagreb with the rare disease Arthrogryposis multiplex congenita. In translation, it is a limitation in movements.

This disease includes the upper and lower extremities. In rare cases, only the upper extremities, so Mario only has problems with his arms. He was diagnosed with gastroschisis at birth and complications arise. The doctor’s prognosis was that he would not survive, so he was baptized the next day. He spent three months in the incubator. At the age of three, he went to America for an examination and received a recommendation for physical therapy and surgery.

– Upon my return, my parents provided me with physical therapy, which I received five times a week. I started kindergarten and there I adapted well with the other children, and I had exercises for my hands. That helped me a lot and I felt accepted. In addition to the physical therapy at home, mom exercised with me several times every day. I was constantly going for examinations and treatment – says Mario about the first years of his life.

The first encounter with insults made Mario stronger.

– I started elementary school according to the regular program, although my parents worked hard for me to be enrolled according to the regular program. It was there that I encountered insults for the first time, but later I got used to the fact that I am ‘different’ and that there will always be that. During elementary school, I started swimming in a competitive program. It was a club for disabled people only. I participated in numerous competitions. It helped me a lot to become independent and develop.

It was another additional therapy for me. In fact since then I have been completely busy with commitments. School in the morning, physical therapy, swimming, exercising again with mom. I had no free time for myself. My parents and brother were a great support for me to get through it all. I am very grateful to them for that. In the first place, to the parents who fought for their child. My every success is theirs, and so is my failure. Pain and struggle all the time, but will, effort, desire, faith in yourself and in God together with a positive attitude give you a goal. That’s my recipe for survival.

I’m trying to turn a minus into a plus. Really anything is possible when you want. I must not forget my friends who were always there for me and helped me when I needed it – says Mario, who today gives motivational lectures outside Croatia.

– In high school, it was much easier in terms of accepting myself and being quite understanding of my uniqueness. I graduated as a sanitary technician and, with the help of professors and colleagues, overcame the obstacles in the laboratory. After that, I entered the Health Polytechnic to become a sanitary engineer, I completed psychological and pedagogical education as a lecturer at the Teacher Training College, and I am currently in the Specialist Study for a graduate sanitary engineer.

I am very satisfied with the attitude of my colleagues and professors towards me – says Bebek, who once listened to comments like: ‘God punished you for having such hands’, ‘how are you not ashamed to walk with such hands’, ‘how is your mother not ashamed for giving birth to you like that?’

– I also did an internship at the Public Health Training Institute of Dr. Andrija Štampar and I did great. I would like to work on the same in the future. My desire is to work on health promotion and to deal with bioethics. I also want to make people aware of the principle of subsidiarity. The principle of subsidiarity is primarily a rule for determining jurisdiction in the realization of common property.

What an individual can do on his own, society must not take from him, or what a smaller community can do, a larger society must not deny it. Subsidiarity or assistance. Society must provide support. An individual should strive to the maximum within the limits of his capabilities. The new definition of Bioethics tells us that it is love for life. I am currently engaged in motivational lectures.

I sensitize the public about the life of people with disabilities. I tell my life story and try to motivate people, so that they don’t think that their problem is the most difficult and that they don’t underestimate their abilities. Life is a puzzle that a person puts together for years – says Mario.

Finally, Mario wrote a few motivational lines to our readers:

– The key components for a successful life are will, effort, desire, faith in oneself and in God. It seems that there is one direction, one path, one direction, one path, one diagonal, but there is only one life with countless directions, paths, directions, paths. It’s your turn to determine the direction of movement.

Don’t worry if you’re fooling around. Worry if you don’t realize you’re a fool. Even the best make mistakes. Follow your heart, but check yourself a hundred times when you intend to do something. Be wise and don’t run in front of the bully. It could cost you. Just remember, life is too short to be wandering all the time.

Wake up from your sleep, because you will sleep when you die. Now is the time to open your eyes and choose the path. Choose your path carefully. I always have a solution for everything. When they touch me and talk to me, I just turn my head and smile and move on to new victories. Where my heart desires.

There will always be obstacles, some are easier, some are more difficult, but it is important that you overcome them. If there is a problem, there is a solution. And when there are a lot of obstacles on your way, it means that you are worth it and that’s the only way to get stronger. Later, when you get stronger, just a smile on your face will be enough to win some things.

Remember, after the rain the sun always comes, but you have to work hard for that sun to be able to enjoy it. Even the sun should be earned. Believe me, you will thank yourself later. Life is made up of both good and bad things, and the bad things warn us that we have gone astray. Life is a fight with windmills, life is a labyrinth from which only the persistent win.

Every problem is a problem, we think we can’t get rid of it. If we think like that, then we will never find a solution. We must first admit to ourselves that I have such and such a problem and we must find a solution. We must know that there is always a bigger problem. If there were no problems, nothing would work. In a way, these problems are our guideposts and life guidelines. Let’s stay on the ball and not go astray.

There’s nothing wrong with being annoyed, except that it can be worse for you. God gave us a brain to think, so we should think about that problem and try to find a solution. Life is a labyrinth with many dead ends, we need to find a way out. Those dead ends are also problems. Each of us wanders into the dead end of life, but we should not give up immediately, but we should find an exit to the main road and choose the right path! Be the master of your will, and the servant of your conscience! There is always a way out.

While writing the book of your life…. don’t let someone else hold your pencil. No encounter with any person is accidental. Every person has a message that they carry. That message is either his appearance, his behavior… When something bothers you, take the freedom and peace to think about everything, gather your strength and move on. Because life is like a circle. Everything goes in a circle, but you must not fall out of that circle. The only solution for that is strong faith – says Bebek.

Disability digest

EU plan against poverty for persons with disabilities

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The Commission warns that nearly 95 million people in the EU remain at risk of poverty or social exclusion, with single parents, children, persons with disabilities, the elderly, and citizens in precarious employment being particularly affected.

Last week, the European Commission presented a comprehensive social package aimed at significantly reducing poverty and social exclusion in the European Union by 2050.

At the heart of the package is the first-ever EU Poverty Strategy, designed to align Member State policies and direct European funds toward the most vulnerable groups.

The Commission warns that nearly 95 million people in the EU continue to face the risk of poverty or social exclusion; single parents, children, persons with disabilities, older people, and citizens in precarious forms of employment are especially impacted.

Alongside the anti-poverty strategy, the European Affordable Housing Plan was introduced, through which Brussels intends to address the rising cost of property and rent in many European cities.

The Commission plans to increase investment in social and energy-efficient housing, simplify state aid rules for housing projects, and encourage the European Investment Bank to provide stronger financing for public and affordable housing.

Special emphasis has been placed on tackling homelessness and energy poverty—situations where households are unable to cover basic heating and electricity costs.

The Commission also aims to strengthen the implementation of the European Pillar of Social Rights through new measures for a fairer labour market, better protection for workers, and increased access to education, healthcare, and digital services.

The statement notes that Member States will receive additional financial and technical support to implement reforms, including the use of resources from the European Social Fund Plus (ESF+) and other European funds. The Commission maintains that social policy must become an integral part of the green and digital transitions to prevent further deepening of inequalities among EU citizens.

European Commission President Ursula von der Leyen stated that economic progress is meaningless if a large number of citizens remain excluded from basic social and economic opportunities, and that Europe must remain a continent of social security, equal opportunities, and a dignified life for all.

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Disability digest

The EU employment guarantee for persons with disabilities

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Stilizirana pozadina s motivom zastave Europske unije – zlatne zvjezdice na plavoj podlozi uz oblačne teksture.
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Employment statistics at this moment do not support the proclaimed goal of the European Commission of creating a society of equal opportunities

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There are still no significant improvements in better positioning Europeans with disabilities in the labour market.

Proof of this is also a joint letter that as many as 125 organisations sent these days to the European Commission, calling on it to publish a new EU Guarantee for the Employment and Skills of Persons with Disabilities as part of the updated Strategy for the Rights of Persons with Disabilities.

In this letter, organisations state what targeted funds and programmes are needed to reduce the high unemployment rate of persons with disabilities. Among other things, organisations are calling for dedicated funding to enable access to regular employment opportunities, apprenticeships or training. Likewise, better employment opportunities in sheltered workshops. Employment programmes must be designed in such a way as to offer support to companies and organisations in providing the necessary accommodations for a person with a disability in the workplace.

What is, however, particularly important for organisations is that the EU Guarantee for the Employment and Skills of Persons with Disabilities must not affect the right to receive disability benefits and other state support.

– This Guarantee is a key step to ensure that persons with disabilities have equal conditions in the world of work. If we want a competitive Europe, it is essential that we provide everyone with equal opportunities to contribute to the community – said Yannis Vardakastanis, President of the European Disability Forum.

Employment statistics at this moment do not support the proclaimed goal of the European Commission of creating a society of equal opportunities. Namely, only 52.7 percent of persons with disabilities are employed in the European Union, compared to 76.7 percent of persons without disabilities.

Previous research by the European Disability Forum shows that the gap is mainly a consequence of the lack of necessary accommodations and an insufficient supply of assistive technologies. In addition, the digital skills of employees with disabilities are at a significantly lower level compared to those without disabilities.

The joint letter sent to the European Commission calls for the Guarantee to be a key action of the ‘Enhanced Strategy for the Rights of Persons with Disabilities’, and it will be presented during the meeting of the College of Commissioners of the European Commission at the beginning of this May.

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Disability digest

A husband from hell held his wife with a disability captive

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The abuser managed for years to keep the woman isolated from family and friends, and even the authorities had no knowledge of her captivity. She had no access to a phone or the internet

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His name, James Earl Johnson, has recently been filling crime reports across major media outlets in the United States.

He gained unwanted notoriety after it was discovered that he had kept his 46-year-old wife with a disability locked inside their home in Clear Lake, in the U.S. state of Texas, for five years.

The motives behind this shocking case of domestic violence remain unknown, as does the identity of the victim, who is only known to have a severe disability.

During all that time, Johnson managed to isolate her from relatives and friends, and authorities were unaware of her situation. She had no access to a phone or the internet.

Police revealed that the woman was physically abused and severely malnourished. He allegedly gave her only one egg a day and a modest dinner. In addition, he failed to provide the necessary medical care required for her disability.

Johnson ultimately sealed his own fate. Two weeks ago, he briefly left his phone on a bedside table in the room where the woman was locked. She quickly used the opportunity to call the police. During the call, Johnson entered the room, slapped her, and ended the call, but the police had enough time to trace the location.

He was arrested the same day and charged with injuring and abusing a person with a disability. He was later released on $100,000 bail, but only temporarily, as he is expected to face a long prison sentence after trial.

Johnson had purchased a five-bedroom house worth one million dollars, where he had lived with his wife for at least six years, appearing to lead a normal life. Meanwhile, the woman remains in hospital, undergoing rehabilitation after her ‘peaceful’ married life.

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