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MY STORY Viktor Jozić, president of the Association of persons with disabilities Sinergija Samobor

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UOSI Sinergija Samobor will continue to devote a lot of attention to informing its members, the wider interested public, the local community and the media about the topics they deal with, namely assistance to people with disabilities, social assistance and support, provision of social services, humanitarian aid, sports recreation, civil society development, local community development, suppression and protection against discrimination, sustainable urban mobility, promotion of social solidarity, preventive action and improvement and protection of health.

Communication tools such as e-newsletters, the association’s website and Facebook will continue to be tools with which they will distribute news in a simple and fast way and inform relevant stakeholders, the public and the media, about the projects and activities they carry out and about the topics they deal with and activities they carry out.

– In the premises of the association and through social digital platforms, we will systematically work on the permanent life education of our members, so that workshops on various topics will be organized, as well as lectures on social, pension and health issues, as well as other issues related to people with disabilities, in such a way that familiarize themselves with legal regulations and practice.

In 2022, the intention of the association, with the cooperation and financial support of the Zagreb County and the City of Samobor and the City of Sveta Nedelja, is to acquire a new van and solve the issue of hiring drivers. We want to improve the transportation of our members to all social and social activities of our members. Through old and new projects, we will try to hire a part-time driver throughout the year.

We also plan to build a sensory room in which a multidisciplinary team composed of psychologists, speech therapists and experts in educational rehabilitation would be employed through the project. The purpose of the project would be to provide inclusion and social integration to children with disabilities from the autism spectrum.

A half-day stay is also planned, which would include activities of independent living (room hygiene, household chores, preparation of light meals, shopping, financial management), self-advocacy and counseling (information on rights, self-promotion groups and workshops) and maintenance and promotion of health activities (see a doctor, diet, protection of body integrity, functional training, personal hygiene).

During the implementation of the project, activities would be carried out through group and individual work within the framework of a half-day stay and psycho-social support, occupational and social activities that would be designed according to individual plans. The purpose of the activity will include cultivating daily work habits, developing decision-making and selection skills, gaining confidence in expressing opinions, promoting rights and raising awareness of the importance of health care.

Financial sustainability, securing jobs, further education of employees, new employment, maintaining partnership relations with other associations, federations, institutions and local and regional self-government, encouraging motivation and active involvement of members in various activities of the association, as well as providing professional support to members and their families only are some of the determinants of the strategic plan of the association – says the president about the plans for the future.

– I can say without a doubt that in the life of a disabled person there is a lot of pain, tears, sleepless nights, problems with bureaucracy, problems with stigmas and personal inner turmoil and despair. In this way, I would like to quote Nick Vujičić: ‘Give up a life full of self-pity in exchange for a life of purpose, fear is a greater disability than not having arms and legs because challenges exist to strengthen our beliefs, not to run over us’ – he concluded for this once the president of the Association Sinergija from Samobor.

Let’s also mention that the Sinergija association was recently awarded the Zagreb County Charter for 2021.

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Disability digest

ENERGY POVERTY Supporting People With Disabilities

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People with disabilities often have significantly greater electricity needs than other citizens across the European Union

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Energy poverty is affecting a growing number of households across the European Union, and recent research shows that it has a disproportionate impact on people with disabilities. The reasons for this disparity are numerous and extend well beyond financial hardship alone.

People with disabilities generally have higher electricity needs because many rely on medical equipment and assistive devices. They also tend to consume more energy for heating and cooling their homes, particularly people with physical disabilities whose health and well-being often depend on maintaining stable indoor temperatures.

To help address the growing problem of energy poverty, the European Network on Independent Living (ENIL), together with partners in the ASSERT project, has launched an online learning platform for professionals working with households affected by energy poverty.

The ASSERT platform has been developed primarily for organisations representing people with disabilities, social workers, energy advisers, healthcare professionals and other specialists who need additional knowledge and practical skills to tackle energy poverty more effectively.

In addition to professional training, the platform provides people with disabilities with practical advice and guidance on avoiding energy poverty, managing household energy costs and making more efficient use of energy systems.

More information is available on the ASSERT website at assert.aisforacademy.eu. Registration is free and open to organisations and professionals interested in strengthening the capacity of people with disabilities to respond more effectively to energy poverty.

ASSERT is a relatively new European project funded through the LIFE Programme. Over the past year and a half, it has been working to ensure that people with disabilities are not left behind in Europe’s transition to clean energy. The project currently operates in five European Union member states—Cyprus, France, Greece, Italy and Spain—and brings together experts from a wide range of fields, including disability rights and energy efficiency.

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Disability digest

Sephora ‘Quiet Hours’ Make Shopping More Accessible

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Global beauty retailer Sephora has introduced a ‘Quiet Hours’ programme across its stores worldwide, aiming to create a more comfortable and accessible shopping experience for neurodivergent people and anyone who prefers a calmer retail environment

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The initiative is the first global programme of its kind in the beauty retail sector. During designated Quiet Hours, stores will lower the volume of in-store music, adjust digital displays to reduce visual stimulation and, where possible, minimise the presence of strong fragrances. At selected locations, customers will also have access to additional options, such as mobile checkout, making the shopping experience simpler and less stressful.

The programme was developed in partnership with Open Inclusion and Purposeful Futures, with direct input from neurodivergent customers and employees whose experiences helped shape the initiative.

Before its global rollout, Sephora tested the programme in 32 stores across eight markets. The pilot project found that the majority of neurodivergent customers believed Quiet Hours significantly improved their shopping experience. In addition, 90% of all surveyed customers said the initiative made stores more inclusive and welcoming for everyone.

Experts involved in developing the programme note that people with autism, ADHD and other sensory issues often find shopping centres highly challenging environments because of loud music, bright lighting, strong fragrances and large crowds. Even relatively small adjustments, they say, can substantially reduce sensory overload and make shopping a more comfortable and independent experience.

The initiative has also received positive feedback from employees, who report that the calmer environment enables better communication with customers and reduces stress throughout the working day.

By introducing Quiet Hours, Sephora joins a growing number of major retailers offering sensory-friendly shopping periods. Similar initiatives have been adopted in recent years by supermarkets, department stores and cinemas, reflecting a broader understanding that accessibility is not only about removing physical barriers but also about creating environments where people with sensory sensitivities can feel safe, comfortable and included.

Sephora says Quiet Hours represent just one step towards creating a more inclusive shopping experience and has pledged to continue working with the neurodivergent community to develop solutions that meet the needs of an even wider range of customers.

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Disability digest

Manifesto on the Rights of Young People With Disabilities

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Without young people with disabilities in newsrooms, government ministries and national parliaments, the slogan “Nothing About Us Without Us” remains just that—a slogan, a decorative phrase displayed on banners at disability rights marches.

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Consider for yourself to what extent young people with disabilities in the European Union truly enjoy their rights, and whether those rights are fully realised or remain largely declarative—a polished façade of the welfare state with deep cracks beneath the surface.

One answer to these questions can be found in a survey conducted last year by the Youth Committee of the European Disability Forum (EDF). The survey gathered responses from 183 young people with disabilities across all EU member states. Its findings were published in the EDF manifesto on the everyday lives of young people with disabilities, entitled The Right to Shape Our Future.

The survey results should serve as a wake-up call for decision-makers across the European Union. Respondents expressed dissatisfaction with every major aspect of social life. Overall, young people with disabilities said they do not enjoy the right to live in a fair and accessible society. They also reported that their opportunities to shape their own futures and participate in decisions affecting their lives are significantly restricted.

When it comes to influencing society, respondents said that the media either ignore their lives and rights altogether or portray them through stereotypes. Even when useful information is available, it is often presented in formats that remain inaccessible to people with disabilities.

Without young people with disabilities working in media organisations, government ministries and national parliaments, the slogan “Nothing About Us Without Us” risks remaining exactly that—a slogan, a symbolic message carried on banners rather than reflected in public policy and everyday decision-making.

Young respondents were equally critical when asked about accessibility, which the manifesto describes as little more than “a decent proposal” rather than a lived reality.

“People with disabilities face a ‘disability tax’—they pay more for housing, transport and healthcare while navigating a world that was not designed with them in mind. From inaccessible bus stops to cafés that cannot be entered, the built environment continues to undermine independence. True equality requires infrastructure that anticipates diversity rather than treating it as an afterthought,” the manifesto states.

For many young people with disabilities, the right to shape their own future is further limited by segregated education systems that prevent them from reaching their full potential. This, the manifesto argues, contributes to a “poverty trap.”

By the time they complete their education, many are not adequately prepared to compete in the labour market, while the jobs they do obtain often provide only enough income to meet their basic needs.

At the same time, earning an income can result in the loss of essential social support, effectively penalising ambition and trapping many young people with disabilities in poverty, the EDF manifesto concludes.

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