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SUZANA REŠETAR Personal assistance is not a luxury

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Žena svijetle kose i naočala sjedi u televizijskom studiju s ljubičasto osvijetljenom pozadinom. Odjevena je u tamni sako s dvorednim kopčanjem i crnu majicu, gleda blago u stranu i djeluje smireno i fokusirano, kao tijekom intervjua ili studijskog razgovora.
Photo: Sjena Association/Facebook

Parents of children with disabilities are waging a relentless battle with the system. Fortunately, the results are becoming visible as well, as in the case of the Sjena Association, which requested a constitutional review of the Personal Assistance Act

By a unanimous decision, the Constitutional Court repealed several discriminatory provisions of the Act, thereby preventing the denial of a fundamental human right—the right to personal assistance services—to children and persons with the most severe disabilities.

We spoke with Suzana Rešetar, president of the Sjena Association, about the Constitutional Court’s decision and the drafting of a new regulation with the force of law.

Did the Sjena Association expect the Constitutional Court to deliver a historic decision?

– Honestly, we did expect it, because it was a legal and moral necessity. Not because we believe the system always works, but because the violations of rights were so obvious that they could no longer be ignored. With this decision, the Constitutional Court merely confirmed what we have been warning about for years—that fundamental human rights cannot be conditioned by administrative capacity or the labor market.

What message does this decision send to the Croatian public?

– The message is clear: human rights are not charity. Persons with disabilities are not a burden on the system, but holders of rights guaranteed by the Constitution. The state exists in order to ensure the conditions for exercising those rights, not to look for excuses to deny them.

To what extent will this decision make life easier for persons with disabilities and their families?

– For many families, this decision means the difference between mere survival and a dignified life. Personal assistance is not a luxury; it is a prerequisite for independence, inclusion, and a basic quality of life. This decision brings hope, but also an obligation for the state to finally implement this right in practice.

Not everyone is pleased with the decision. How do you respond to the claim that expanding the number of beneficiaries will reduce the availability of personal assistants, who are already in short supply?

– Such a claim dangerously replaces the real issue and is usually a spin. The shortage of assistants is not a problem caused by persons with disabilities, but the result of years of state neglect—poor working conditions, low wages, and a lack of systematic planning. You cannot restrict the rights of one group because the system, or public policies, have failed to do their job.

What is the solution to the shortage of assistants in certain areas?

– The solution is well known; it has simply been ignored for years: improving working conditions and wages for assistants, a national recruitment campaign, more flexible models of assistance in smaller communities, and long-term planning instead of crisis firefighting. The state must take responsibility rather than shifting the burden onto the most vulnerable.

What do you expect from the regulation with the force of law announced by Prime Minister Andrej Plenković?

– We expect the regulation not to be cosmetic, but implementational. It must clearly secure funding, remove obstacles, and ensure that the Constitutional Court’s decision is carried out without further delays or bureaucratic traps. Anything else would be yet another betrayal of the trust of persons with disabilities.

The Sjena Association has announced its participation in drafting a new Personal Assistance Act. Do you stand by that decision?

– Absolutely. But not pro forma. We are ready to cooperate only if the voices of persons with disabilities and their families are genuinely taken into account, not used as an alibi. This law must be shaped by those who live personal assistance every day—not only by those who administer it from their offices.

Disability digest

ENERGY POVERTY Supporting People With Disabilities

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Osoba sjedi ispred velikog stroja za prženje kave i prati njegov rad.
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People with disabilities often have significantly greater electricity needs than other citizens across the European Union

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Energy poverty is affecting a growing number of households across the European Union, and recent research shows that it has a disproportionate impact on people with disabilities. The reasons for this disparity are numerous and extend well beyond financial hardship alone.

People with disabilities generally have higher electricity needs because many rely on medical equipment and assistive devices. They also tend to consume more energy for heating and cooling their homes, particularly people with physical disabilities whose health and well-being often depend on maintaining stable indoor temperatures.

To help address the growing problem of energy poverty, the European Network on Independent Living (ENIL), together with partners in the ASSERT project, has launched an online learning platform for professionals working with households affected by energy poverty.

The ASSERT platform has been developed primarily for organisations representing people with disabilities, social workers, energy advisers, healthcare professionals and other specialists who need additional knowledge and practical skills to tackle energy poverty more effectively.

In addition to professional training, the platform provides people with disabilities with practical advice and guidance on avoiding energy poverty, managing household energy costs and making more efficient use of energy systems.

More information is available on the ASSERT website at assert.aisforacademy.eu. Registration is free and open to organisations and professionals interested in strengthening the capacity of people with disabilities to respond more effectively to energy poverty.

ASSERT is a relatively new European project funded through the LIFE Programme. Over the past year and a half, it has been working to ensure that people with disabilities are not left behind in Europe’s transition to clean energy. The project currently operates in five European Union member states—Cyprus, France, Greece, Italy and Spain—and brings together experts from a wide range of fields, including disability rights and energy efficiency.

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Disability digest

Sephora ‘Quiet Hours’ Make Shopping More Accessible

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Police s ruževima i sjajilima za usne u različitim nijansama izložene u trgovini kozmetikom.
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Global beauty retailer Sephora has introduced a ‘Quiet Hours’ programme across its stores worldwide, aiming to create a more comfortable and accessible shopping experience for neurodivergent people and anyone who prefers a calmer retail environment

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The initiative is the first global programme of its kind in the beauty retail sector. During designated Quiet Hours, stores will lower the volume of in-store music, adjust digital displays to reduce visual stimulation and, where possible, minimise the presence of strong fragrances. At selected locations, customers will also have access to additional options, such as mobile checkout, making the shopping experience simpler and less stressful.

The programme was developed in partnership with Open Inclusion and Purposeful Futures, with direct input from neurodivergent customers and employees whose experiences helped shape the initiative.

Before its global rollout, Sephora tested the programme in 32 stores across eight markets. The pilot project found that the majority of neurodivergent customers believed Quiet Hours significantly improved their shopping experience. In addition, 90% of all surveyed customers said the initiative made stores more inclusive and welcoming for everyone.

Experts involved in developing the programme note that people with autism, ADHD and other sensory issues often find shopping centres highly challenging environments because of loud music, bright lighting, strong fragrances and large crowds. Even relatively small adjustments, they say, can substantially reduce sensory overload and make shopping a more comfortable and independent experience.

The initiative has also received positive feedback from employees, who report that the calmer environment enables better communication with customers and reduces stress throughout the working day.

By introducing Quiet Hours, Sephora joins a growing number of major retailers offering sensory-friendly shopping periods. Similar initiatives have been adopted in recent years by supermarkets, department stores and cinemas, reflecting a broader understanding that accessibility is not only about removing physical barriers but also about creating environments where people with sensory sensitivities can feel safe, comfortable and included.

Sephora says Quiet Hours represent just one step towards creating a more inclusive shopping experience and has pledged to continue working with the neurodivergent community to develop solutions that meet the needs of an even wider range of customers.

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Disability digest

Manifesto on the Rights of Young People With Disabilities

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Mladić sjedi na klupi i čita knjigu, dok se pokraj njega nalaze prazna invalidska kolica.
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Without young people with disabilities in newsrooms, government ministries and national parliaments, the slogan “Nothing About Us Without Us” remains just that—a slogan, a decorative phrase displayed on banners at disability rights marches.

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Consider for yourself to what extent young people with disabilities in the European Union truly enjoy their rights, and whether those rights are fully realised or remain largely declarative—a polished façade of the welfare state with deep cracks beneath the surface.

One answer to these questions can be found in a survey conducted last year by the Youth Committee of the European Disability Forum (EDF). The survey gathered responses from 183 young people with disabilities across all EU member states. Its findings were published in the EDF manifesto on the everyday lives of young people with disabilities, entitled The Right to Shape Our Future.

The survey results should serve as a wake-up call for decision-makers across the European Union. Respondents expressed dissatisfaction with every major aspect of social life. Overall, young people with disabilities said they do not enjoy the right to live in a fair and accessible society. They also reported that their opportunities to shape their own futures and participate in decisions affecting their lives are significantly restricted.

When it comes to influencing society, respondents said that the media either ignore their lives and rights altogether or portray them through stereotypes. Even when useful information is available, it is often presented in formats that remain inaccessible to people with disabilities.

Without young people with disabilities working in media organisations, government ministries and national parliaments, the slogan “Nothing About Us Without Us” risks remaining exactly that—a slogan, a symbolic message carried on banners rather than reflected in public policy and everyday decision-making.

Young respondents were equally critical when asked about accessibility, which the manifesto describes as little more than “a decent proposal” rather than a lived reality.

“People with disabilities face a ‘disability tax’—they pay more for housing, transport and healthcare while navigating a world that was not designed with them in mind. From inaccessible bus stops to cafés that cannot be entered, the built environment continues to undermine independence. True equality requires infrastructure that anticipates diversity rather than treating it as an afterthought,” the manifesto states.

For many young people with disabilities, the right to shape their own future is further limited by segregated education systems that prevent them from reaching their full potential. This, the manifesto argues, contributes to a “poverty trap.”

By the time they complete their education, many are not adequately prepared to compete in the labour market, while the jobs they do obtain often provide only enough income to meet their basic needs.

At the same time, earning an income can result in the loss of essential social support, effectively penalising ambition and trapping many young people with disabilities in poverty, the EDF manifesto concludes.

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